Frequently Asked Questions

What is Type II SMA?

Please see our information page on Spinal Muscular Atrophy.

How does this affect Maxwell?

The condition primarily affects Maxwell's motor skills. Maxwell lacks strength throughout his whole body and struggles to do day to day tasks which many of us take for granted. The main task is walking.

Please see the About Maxwell page for more information about Maxwell's day to day problems.

Is Maxwell in any pain?

Maxwell isn't in any pain, however he has a slight tremor when carrying out tasks.

What will your fund raising be spent on?

Money raised will be spent on the following:

• £15,000 car - Maxwell will need a specially adapted car which needs to be suitable for his wheelchair  FUNDS HAVE BEEN RAISED, MANY THANKS
• £65,000 House Alterations - We are faced with two options, which are; moving house or altering our existing home. After having several meetings with  Huntingdon District Council and other relveant bodies, altering our existing home is by far the cheaper alternative. A housing grant is given, but unfortunately isn't enough.
  Modifications will include:
  - Maxwell requires a Wet room for his day to day hygiene.
  - A downstairs toilet big enough to manoeuvre a wheelchair.
  - A room to store his essential mobility equipment.
  - A larger bedroom so he can move around and play easily on his chair.
  - A through the floor lift. Maxwell requires access to his bedroom and bathroom. Maxwell does not have the strength to use a Stair lift and needs the use of his wheel chair in all areas of the house. We have also looked at stair lifts as these are a cheaper option. However we have been advised away from this, as it eliminates Maxwell's independence.
  
• £800 Stand Up Wheel Chair.  Recommended by his Physio, for development of upper body strength. This in-turn will help prevent Scoliosis (curviture) of the spine which leads to further health complications. PURCHASED WITH THANKS